Hospital Sant Joan de Déu de Barcelona

 

Barcelona Children’s Hospital Sant Joan de Déu (HSJD) is one of the leading medical centers in Spain for childhood and adolescence, offering a comprehensive and multidisciplinary approach to health care. HSJD combines the more advanced clinical, scientific and technological advances with a humanized assistance to patients and families.

 

The Institute of Pediatric Research Hospital Sant Joan de Déu (IRP-HSJD) is focused on pediatric and child development research. HSJD holds National Accreditations as a Service Reference (CSUR) for all Spain and is a member of several International Reference Networks in cancer and rare diseases. In the next future, the new Pediatric Cancer Center Barcelona (PCCB) will become one of the largest pediatric oncology centers in Europe.

 

The Hematology Laboratory of HSJD is fully equipped with all the human and technical resources needed for the diagnosis of all the blood diseases in children and is one of the national referral centers for the diagnosis of pediatric leukemias. The laboratory team works closely with the Hematology and Oncology Departments, both in daily clinical practice and in clinical and translational research projects.

 

Hospital de Pediatría Profesor Dr. Juan P. Garrahan

 

Hospital de Pediatría Prof. Dr. Juan P. Garrahan (HGAR) is a 550-bed tertiary care public pediatric center, with specialized assistance for hematology-oncology patients. It is the busiest referral pediatric cancer center in Argentina, treating 450 new patients per year, which accounts for one third of childhood cancer in the country. The Hospital admits patients with malignant diseases from all over the country and approximately 140 new acute leukemias per year. Results in survival of acute leukaemia have improved from our first protocols to the present times. The Hospital performs Liver, Kidney, Heart & Lung and Hematopoetic Stem Cell transplants. HGAR holds a T cell depletion Lab for Haploidentical stem cell transplantation and a Public Cord Blood Bank. HGAR receives samples from all over the country for diagnostic/follow up studies. Pioneer in treatment strategies and diagnostic tools, cellular Immunology Lab is accredited by I-BFM-SG for ALL flow cytometry MRD determination since 2010 and participates at Euro-MRD group.

 

Hospital de Niños Dr. Roberto del Río

 

Hospital de Niños Roberto del Río is a 210-bed tertiary-care paediatric center, dedicated to healthcare and teaching, including a Department of Oncology and Haematology. Is a reference cancer center for part of Santiago, the main city, and also other regions according to an established network. It takes care of 80-90 new patients per year, accounting for one fifth of childhood cancer cases in the country, being the second center in Chile. Since the 70´s developed treatment strategies for all types of cancer, but in special for acute leukaemias.

 

From June 2018, all samples of children with laeukemia and lymphoma from the national public system of health (accounting for 85% of all cases of pediatric leukamias in the country) will be received in HNRR to perform immunophenotyping and minimal residual disease at the flow cytometry laboratory. 

 

Universidad de Chile has the northern pediatric seat in this hospital with many different fellow programs.

 

Newcastle University:

 

The Leukaemia Research Cytogenetics Group (LRCG) based in the Northern Institute for Cancer Research at Newcastle is involved in the discovery, characterisation and clinical assessment of numerous genetic biomarkers in acute lymphoblastic and myeloid leukaemia. 

 

Over the past 25 years, Professors Anthony Moorman and Christine Harrison have established a database comprising detailed genetic, clinical, outcome and treatment data on >30000 patients treated on consecutive UK clinical trials. Using this unique resource we have been able to translate our research into clinical practice by incorporating genetic biomarkers into risk algorithms used in treatment protocols across the world.

 

More recently, we have been focussing on integrating risk factors to assist the design of novel risk stratification algorithms.

 

Asociación Pulseras Candela:

 

Pulseras Candela is the effort of many families and friends with a common objective: to support the research on pediatric cancer.

 

Everything started in the Onco-Hematology Department at the Sant Joan de Déu pediatric Hospital in Barcelona, as an initiative from the little patients, their families and friends; they started making wristbands with colorful threads, to give them as a present to people who donated for the childhood cancer research. The little patients asked the society for help, and the initiative went viral so soon hundreds of voluntaries came together making or distributing the Candela wristbands: schools, nursing homes, neighborhood associations, shops, and sports clubs. 

 

The project contributes to the childhood cancer research and engages the solidary implication and collaboration of the whole society, has numerous awards, like the Moviliza 2017 award, given by the UNICEF Spanish Committee.

 

In 2017, 3 years after the project began, Pulseras Candela was founded as a non-profit association. The association’s objective is to fight the development of cancer in all its forms, by creating research promotion and encouragement activities, trough fundraising for public and private entities with acknowledged prestige and social character dedicated to the childhood cancer research; and the promotion of voluntary social work.

 

Since its beginning until the 2018 exercise closure, Pulseras Candela has contributed with more than 2 million euros to the research of several pediatric cancers, among them Childhood Leukemia.

 

Fundación María Cecilia

 

The Foundation María Cecilia (FMC) has been giving treatment to patients at San Isidro’s Maternal and Children Hospital “Dr. C.A. Giannantonio” since 1995.

 

It is the only Foundation in Argentina setting up and supporting a free pediatric Hemato-Oncology Service inside a municipal public hospital. 

 

Our mission is to provide children with an immediate diagnosis and medical assistance, always working in an interdisciplinary way, as this is fundamental to obtain the best results in the treatment of pediatric cancer.

 

Institut de Recerca contra la Leucèmia Josep Carreras

 

The Josep Carreras Leukaemia Research Institute is a member of the CERCA group of centres founded by the Catalan Government to promote a biomedical cluster in the north of Spain. The IRJC will work to improve the diagnosis, prognosis and treatment of leukaemia and other haematological diseases. It will do this by assembling a group of international researchers; they will work on both basic and clinical aspects of the diseases and in close collaboration with reference hospitals and the doctors treating patients. The eventual goal is to make all leukaemias curable.

 

St. Anna Children’s Cancer Research Institute

 

The St. Anna Children’s Cancer Research Institute (CCRI) is an internationally renowned multidisciplinary research institution with the aim to develop and optimize diagnostic, prognostic, and therapeutic strategies for the treatment of children and adolescents with cancer by combining basic with translational and clinical research. The CCRI is closely affiliated to the St. Anna Children’s Hospital, the largest clinical hemato-oncological center for the treatment of childhood cancer in Austria, and to its spin-off SME Labdia Labordiagnostik GmbH.

 

The focus of research is on the specific characteristics of childhood tumor diseases in order to provide young patients with the best possible and most innovative therapies. Dedicated research groups in the fields of tumor genomics and epigenomics, immunology, molecular biology, cell biology, bioinformatics and clinical research are working together to harmonize scientific experimental findings with the clinical needs of physicians.

 

Charles University

 

Second Faculty of Medicine of the Charles University is one of the leading institutions in the Czech Republic in the field of medical education and research. It is the most popular medical school in the country, admitting only about 11% of applicants for the medical studies. One third of the total number of students is enrolled in the graduate study programme. The school is perennially among top three biomedical research institutions in the Czech Republic according to the national scoring system. It focuses mainly on clinical and translational research, with the paediatric haematology and oncology being the most prolific subject.

 

The CLIP Laboratories of the Department of Paediatric Haematology and Oncology represent internationally recognised diagnostic and research group in the field of childhood haematological malignancies with complete infrastructure, focusing on residual disease detection. CLIP provides the entire country with the laboratory diagnosis of childhood leukemia, residual disease follow-up and perform ambitious translational research.

 

Fundación Pérez Scremini

 

Fundación Pérez Scremini (FPS) is a non-profit organization compromised with the cure of Paediatric Cancer in Uruguay. 

 

FPS supports every aspect of cancer care, from treating our children and adolescents to embracing a creative approach to find solutions appropriate and consistent with the problems of every kid and his/her family. FPS´s support gives every patient an equal opportunity to fight and survive the disease. FPS represents the legal Institution, recognized by the Ministry of Public Health, to manage our National Reference Center for Cancer in Children. FPS´s organization is composed by an administrative staff, Physicians, Nurses, Social Workers, Psychologist and an important number of volunteers spread all over the country. 

 

FPS is supporting also clinical research on the field and is running the National Cancer Register for patients under 18 years old.

 

Asserta Global Healthcare Solutions

 

Asserta focusses its activity on a Clinical and Business Intelligence (C&BI) consultancy covering  the aggregation, analysis, and use of clinical, operational and financial data, helping the decision-making of healthcare organizations to continuously improve patient care delivery, health outcomes, efficient and safe use of resources and business operations.

 

Asserta has developed its own C&BI solutions to provide retrospective and predictive analysis. Our multidisciplinary team also gives advice on specific measures to be implemented to improve clinical, operational or financial challenges.

 

As a part of its activity, Asserta participates in international projects related to the management of innovation, real world research and the measurement of social impact.

 

Fundación Natalí Dafne Flexer

 

Natalí Dafne Flexer Foundation (FNDF) is a Non Profit Organization whose mission is to help children and adolescentes suffering from cancer and their families, to get the best available treatment on time, with the best possible quality of life, and to obtain necessary information and provide the best possible access to support and health care services. 

 

Through our nine chapters, we currently cooperate with all hospitals that assist paediatric oncology patients in Argentina. We have also developed strong links with institutions and other help groups, not only in Argentina, but in Latin America.

 

The FNDF’s interventions are strongly focused on the patients’ needs. Beside the direct services supporting practical and emotional needs, our interventions include Advocacy, Health System’s Influence, the improvement of the Pediatric Oncology in the whole country and Clinical and Psycosocial Research.

 

Istituto Superiore di Sanità

 

The Italian National Institute of Health (Istituto Superiore di Sanità, ISS) is the main Italian research institute in the biomedical and public health field. It is the technical and scientific body of the Italian National Health Service.

 

Mission: promotion and protection of national and international public health through research, surveillance, regulation, control, prevention, communication, counselling and training.

 

The ISS produces knowledge through research and trials and disseminates
scientific knowledge and evidence to decision-makers, professional workers and citizens in order to protect and promote public health. The Institute collaborates on research activities and clinical trials with national institutions performing public health functions such as the Ministry of Health and the Ministry for the Environment, regions, local health units, hospitals and scientific institutes for research, hospitalisation and healthcare. It is also involved in a wide range of international activities including scientific and technical support to the European Commission and its Member States, to WHO, EFSA, ECDC, IARC, OECD, OIE, UNEP, and other organizations, and to developing countries, to countries with economies in transition, and to those suffering natural emergencies or war situations. The Institute plans, develops and organises training courses on health education in the field of public health for the personnel of the National Health Service. It also organises congresses, conferences, workshops and seminars both at national and international level on important public health issues.

 

The ISS, through the National Center for Rare Diseases, acts as a coordinator of rare disease research, surveillance and public health actions at the national and international levels.

 

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